I recently found out that I have Hepatitis C and Im always sleeping well for the past 4mths anyways is this normal and what can I do I feel like Im dying? Ive alienated myself from family and friends I just dont do anyting anymore and I feel like like its killing me.
Is anyone out there suffering from hep C and has no energy and sleeps all the time and alienated themselves?
Are you sure its HpC and not Fibromyalgia!???
Man i feel ya!!! If you get any helpful hints/tips please PLEASE share them !!! It is all i can do to get my Wee Ones off to school in the AM's and then its back to the couch for me....THis is about the ONLY thing i do when i feel up to doing anything at all, weakness and migraines etc...HUGZ!!!!
Reply:YES! I did! As I got older, my awake hours became less. I was sleeping up to 18 hour days and had severe fibro because of it.
((FIBRO IS A SYMPTOM OF A DISEASE, FIBRO DOES NOT HAPPEN BY ITSELF!!!)) just to clear that up to a post.
It literally took me sometimes 2 hours just to get out of bed to use the restroom in the morning.
The doctor assumes I got hcv infection via jetshot vaccine in the mid 70's at age 8. Fibro started in by 13 as did depression. No one understood me, no doctor could figure it out until I was 34. I had many symptoms but only mild fibrosis and bridging when diagnosed.
I did treatment, I am sustained (cured) and every bi-directional disease has deminished but brain fog (probably due to all the antidepressants doctor after doctor put me on prior to correct diagnosis.) Fibro? WHAT FIBRO? My hcv is sustained so it cannot get into the joints and bones.
It is easy to alienate yourself when you have no energy to do anything.
If you need to talk, heppystephy@yahoo.com or heppystephy on yahoo messenger.
HUGS! I've been there!!!!
Reply:That's me! I have to lie down after getting dressed, if I can get up to get dressed! I am 25 weeks into treatment and just continue to get worse with added symptoms. I had several blood transfusions in 1978 and believe this is where my Hep c came from. I discovered it in 2002. I started treatment the first time and after 2 mos. told my doctor exactly what you said, cant' do anything and I feel like I'm dying. That minute they took me off the treatment and told me to see someone about depression. I'm back on treatment , on anti-depressants and living in my room, mostly in bed. I am about to change doctors. Sorry, I have no answers, but I have compassion and know what you are feeling.
Reply:I have hep c and am tired a lot. Some days are better than others. You need to stay away from alcohol and eat a healthy diet and even though its hard exercise. It is important that you talk to a dr and get all the lab work done and maybe even a biopsy to see how much damage there is to your liver. I started staying away from my friends because I thought they would be scared of me. People will be supportive if you know what you are talking about when you tell them. If you are scared they will be too. And if not then they are not true friends. Depression is a common side effect of the hep c so maybe talk to your dr about meds for it they will help. Talk to your dr about treatment and find a support group either on line or at your local hospital they should know. talking to people with it will help you. good luck
Reply:I did know someone that had the hepatitis C and he went through some kind of treatments he worked full time the only problem he had gained alittle weight. Looked great,you would never know...
Feel Better Please!!!!!
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